"In 2006 my daughter Eva was diagnosed with Shwachman Diamond Syndrome when she was only 2months! We were lucky to meat a doctor who knew this so rare syndrome.If not, the chance of survival of our daugther would have been compromised.The world PID week is an opportunity for me to disseminate information and advocate for a better diagnosis"

"I am a caregiver to two boys with PI, my oldest Sean,age 10 who receives IVIG every 28 days for CVID ( Hypogam) & my youngest Christopher, age 4 who is in the initial stages of diagnosis with SAD. I know our medical research on PI is good but 8 + years to diagnose is too long for our children to wait...we need to do better, Pray 4 Cure!"

"I am so glad we have the opportunity during WPIW to let those who are not aware of our disease hear about it. Education and Awareness are key to getting on with your life after a life time of illness. If you believe you may have this disease. Please see a Doctor and ask for further testing. You know your body better than anyone."

"I was diagnosed with CVID at age 5 after being sick almost from birth. Attempts to treat it with shots of IgG failed. I began IVIG at 13, shortly after it was approved. I am now in my early 40s; though I do have lung damage & asthma from repeated infections, thanks to IVIG I have gone to college, married, worked & lived a "normal" life!"

"Myself and both of my sons are IgA deficient. My husband works away all week leaving me to deal with all of the illnesses and appts. My employer thinks I misuse my sick time. I wish people knew what having this disease entailed so that they could understand how difficult everyday is in our home. I don't seek empathy, only understanding"

"My 10 yr old grandson Jackson was diagnosed with CVID at around 9 months of age. He receives IVIG weekly, sub q. I pray that through research they will find a cure for this disease, but so grateful for the treatment research has brought now. Jackson is amazing young man, and we look forward to what the future holds for him."

"My son has X linked Hyer IgM sindrome. He is 6 years old and is receiving "energy "(as we could explain him for understand) since he was 3 . This energy is IGV therapy one/month and helps him to stay away of infections. He is a happy and brave child, who's enjoying every second of his childhood, making us proud to be his parents"

"As an adult, diagnosed tangentially to lymphacytic colitis. Treated via IVIG (four different products) in three states for 15 years so far. Although it has not helped my colon as at first hoped, I have had far fewer colds and upper respiratory infections than prior to diagnosis and treatment. Mostly great doctors and nurses. I am blessed."

"I'm Alana,and I will be 3 in June! I've been sick since I was 3 weeks old, and I began IVIG at 4 months old. Although I still have other medical conditions that cause complications, receiving IgG's has helped my Immunodeficiency. I am thankful for IgG's and the continued scientific research, lets help raise awareness to keep it going!"

"I have cared for 3 family members with CVID since April of 1993. Although my wife passed away in 1997, I work with and encourage my 2 adult sons to live a healthy lifestyle and to keep live-saving IVIG available at all times. I hope all nations support policies that promote the early diagnosis and treament of PIDD diseases."

"My passion is helping undiagnosed patients with their options. Diagnosis is important because they can end up with long term effects from not receiving timely treatment. Then I recognized symptoms of PI in myself. I got treatment, but had to advocate for subcutaneous immunoglobulin due to my veins."

"I was so happy when I was finally diagnosed with PI and started responding to immune globulin. Finding out about the Immune Deficiency Foundation and thousands of other patients just like me has also been life changing. I no longer feel I am fighting a disease all alone.. "

"At age 24, my children were 4 & 9 and I couldn't even get out of bed. It was painful to see my children so helpless & sad. One day, my boy looked into my eyes and said; Mami, don’t die on me! At 32, I was diagnosed with CVID. With the right amount of imunoglobuline & my life became... alive! I am now an active mother with happy children!"

"We are parents of an XLA young man, now 34. He had Leukemia at 15, which responded to therapy and no relapse has occurred! He does lots of sports which keeps him with a good respiratory funtion and high spirits! We are active members of AEDIP, and by dissemninating information on PIDs, we hope to improve diagnosis and therapy."

"As a mum to a toddler, I know how terrifying it is to have a sick child. From what I know about PI, it sounds like it is really important that there is an awareness of this in the community - otherwise our loved ones could go undiagnosed for years instead of receiving proper treatment. A great cause!"