Comments Off on It is World PI Week 2022!
From 22-29 April, join us to support access to quality healthcare for all people living with primary immunodeficiency worldwide.
This year, we are highlighting the difference that proper diagnosis, quality treatment and care make for patients and their families.
4 key themes are in the spotlight: early diagnosis and newborn screening, universal access to treatment and care, research, and preventative medicine. Read more here.
New podcast on preventative medicine now available!
This Friday, World PI Week welcomes Prof. Bobo Grimbacher, an Immunologist at the Institute for Immunodeficiency, University of Freiburg in Germany; and Nurse Specialist Ruchi Saka, from the Postgraduate Institute of Medical Education and Research in India, for a new podcast of the #WPIWTalks. This episode examines the role of both preventative medicine and life enhancing measures in the treatment of PIDs.
To hear more, tune into your preferred podcasting platform or click here!
7 days to join the #PIctureAwareness challenge: Strike a Y!
Join us virtually by striking a Y to show your support for access to quality healthcare for patients. Send us your picture or post it on social media with #PIctureAwareness.
Take part in the World PI Week
World PI Week is for everyone. There are many ways to mark the week, from raising awareness of primary immunodeficiency online, joining our #AccesstoCareMatters campaign, engaging with the media, contacting your national/local representatives to share information, donating plasma, to joining an online event in your country, or running for the PID cause! Find the list of all the actions you can take here.
What is on the agenda this week?
- 22 April: Episode 4 of the #WPIWTalks podcasts
- 22-29 April: #PIctureAwareness challenge: Strike a Y with us!
- 22-29 April: Join our Twibbon campaign
- 22-29 April: Join the #AccesstoCareMatters campaign. Each day of the week focuses on a specific topic from new-born screening, access to specialists, to immunoglobulin treatment, gene therapy or transplantation.
- 27-29 April: World PI Week is at the International Primary Immunodeﬁciencies Congress (IPIC) in Portugal!
- 29 April: Launch of our policy pledge
Download the campaign materials
You can access all the campaign materials here (poster, e-banners, social media assets and more). Local resources and translations are available here. Watch and share the campaign teaser videos.
Will you be striking a “Y” with us this World PI Week? Together, we can bring about change for the millions living with a PID worldwide.