22nd-29th April 2022

Share your voice on Social Media! 

Social media are a fantastic vehicle to raise awareness of patients, professionals, public authorities and the wider public. Make sure to engage in conversations on Facebook and Twitter, using #primary #immunodeficiency and @WorldPIWeek. 

You can also share your nice pictures on Instagram!


Looking for suggestions of tweets and posts?

See below for inspiration!

  • #Primary #Immunodeficiency said to affect over six million people worldwide. Help raise awareness on PI @WorldPIWeek
  • 70 to 90% of #Primary #Immunodeficiency sufferers remain undiagnosed. Help raise awareness on PI. Celebrate @WorldPIWeek on 22-29 April
  • Join our call to improve early diagnosis, appropriate treatment, and management of #Primary #Immunodeficiency. Celebrate @WorldPIWeek on 22-29 April
  • Safer, more efficient and appropriate treatments and optimum care for #Primary #Immunodeficiency patients throughout the world @WorldPIWeek
  • #Primary #Immunodeficiency patients require continuous access to immunoglobulin replacement therapies. Celebrate @WorldPIWeek on 22-29 April
  • Immunoglobulin replacement therapies should be made available to all #Primary #Immunodeficiency patients worldwide. Celebrate @WorldPIWeek on 22-29 April.
  • All #Primary #Immunodeficiency centers should have access to a wide spectrum of IgG products in order to provide optimal care to patients. Celebrate @WorldPIWeek on 22-29 April.
  • Ensuring availability and optimal dosing of IgG to enhance #Primary #Immunodeficiency patients’ quality of life. Celebrate @WorldPIWeek on 22-29 April.
  • Test.Diagnose.Treat. Raise awareness on #Primary #Immunodeficiency. Celebrate @WorldPIWeek on 22-29 April
  • Patients in need should receive hematopoietic stem cell transplantation or gene therapy regardless of where they live @WorldPIWeek

Recent News

  • It is World PI Week 2022!

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  • New #WPIWTalks Podcasts out now!

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  • New podcast on early diagnosis and newborn screening now available

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  • New Campaign on the Importance of Access to Quality Care for People Living with PID

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  • New World PI Week podcasts launched in April 

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  • Celebrating Rare Disease Day 2022

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See all World PI Week updates