22nd-29th April 2019

Online presentation about newbornscreening in Sweden

April
22
All Day
Map Unavailable

World PI Week campaign in Sweden 2014 PIO (the Swedish patient organisation for primary immunodeficiencies) is working together with Baxter, CSL Behring, NordicInfu Care, Octapharma and Steripolar to promote World PI Week 2014. From April 22 a short presentation by Professor Anders Fasth about newborn screening for SCID in Sweden will be available online at www.pio.nu and www.immunbristveckan.nu There will also be an interview with a mother who lost her daughter in SCID due to late diagnosis and treatment. In order to spread information about PI, a post card with information about PI and the online presentation will be distributed amongst members, physicians and the general public. Posters with Warning signs for PI have been produced and distributed to General Practitioners by members in PIO. There is also a campaign site available at immunbristveckan.nu. Media, TV, radio, newspapers, will be informed about WPIW through contacts, articles and press-releases. The nationwide organisation PIO works together with the regional organisations to spread as much information as possible through local exhibits and lectures. This week will also be used for fundraising for the organisation.