22nd-29th April 2019

PI Workshop for patients and parents

April
23
All Day
Museo Soumaya, Mexico

This workshop is designed to help patients and parents to understand their disease, how it has to be treated and how to report adverse events related to treatment. During the event FUMENI (Mexican foundation for girls and boys with PI) will organize the patient community to write and sign a “Call to Action” for improving PI diagnosis and access to proper treatment in our country. Later, FUMENI will take patients and parents to Kidzania, an amusement park in Mexico City to have fun and share experiences with other families.