Join Campaign - World PI Week

The World PI Week Story Book

We’ve created this storybook to share the real people behind PID. Flick through the pages to hear from our community – and add your voice by clicking on the ‘Share your story’ button below. Whether you have a message of support, celebration or struggle – we want to hear it. When you’re done, remember to share your story with your friends on Facebook and Twitter with the sharing buttons. Thank you for your support! The World PI Week Story Book

Shae Lane

After 46 years of chronic infections, pneumonia’s and hospitalizations, I finally got my PI diagnosis. It was both a mental ...

Sandra Bennett

Hello, My name is Sandra and I was diagnosed with PI in April 2022 at the age of 59. I ...

Rashann Fontenot

I was diagnosed with CVID in 2011 after having two severe MRSA cases I averaged 12 to 20 upper respiratory, ...

Elizabeth Cheek

My Primary Immunodeficiency (PI) journey started about 32 years before finally diagnosed with CVID. The majority of my infections were ...

Helen Blakeley

In Autumn 2019, I got a chest infection, my breathing has never fully recovered. Numerous respiratory appointments later, a CT ...

Misba Dastagir

I have a rare immunodeficiency called Interleukin 12 Deficiency (lL12). I was born with it and started showing symptoms as ...

Pergent Martine

“I am commited to the PID community for years : it is a fascinated field with so many dedicated people, ...

Rembert Martine

“Jules, 18 year-old on the right in the photo, was diagnosed with a Wiscott Aldrich at 2 months. She waited ...

Brenda Reid

I worked as a Clinical Nurse Specialist with Immunodeficiency patients for 35 years until my retirement a year ago. Now ...

Maria Charalambous

“I am Maria and a mother of a patient living with PI I feel really grateful by helping other patients ...