The World PI Week Story Book
We’ve created this storybook to share the real people behind PID. Flick through the pages to hear from our community – and add your voice by clicking on the ‘Share your story’ button below. Whether you have a message of support, celebration or struggle – we want to hear it. When you’re done, remember to share your story with your friends on Facebook and Twitter with the sharing buttons. Thank you for your support! The World PI Week Story Book
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I have a rare immunodeficiency called Interleukin 12 Deficiency (lL12). I was born with it and started showing symptoms as ...
“I am commited to the PID community for years : it is a fascinated field with so many dedicated people, ...
“Jules, 18 year-old on the right in the photo, was diagnosed with a Wiscott Aldrich at 2 months. She waited ...
I worked as a Clinical Nurse Specialist with Immunodeficiency patients for 35 years until my retirement a year ago. Now ...
“I am Maria and a mother of a patient living with PI I feel really grateful by helping other patients ...
“I was first diagnosed with Lupus, then CVID in the fall of 2009 after battling the year of pneumonias. I ...
“Not long after that I began IVIg therapy and that fully changed my life. I had time between illnesses, I ...
“After years of suffering as a child from recurring chest infections and after numerous tests, I was diagnosed with CVID ...
“Immune globulin saved our daughter’s life and changed the course of her life, and that of our family. Kamille is ...
“I was born with X-Linked Agammaglobulinemia, and I has always been very prone to develop infections. After many ups and ...
