Please add your voice to our global petition!
The petition relates to our Global Primary Immunodeficiencies (PI) Call to Action, which asks governments around the world to take steps to understand, diagnose and manage Primary Immunodeficiency Diseases in their respective countries.
You can also add your story to the World PI Week story book.
Use the buttons below to see what we’re asking governments to do, and endorsed the Call to Action with other individuals, patient organisations, governments and medical professionals.
View the Call to Action Sign the petition
See who has signed
Total Records Found: 1556, showing 30 per page
| Name | Affiliation | Country | I am a... |
|
Sonja Stice |
Parent |
United States |
Patient / carer |
|
Ricardo Pereira |
APDIP (Portuguese PI Patient Organization) |
Portugal |
Patient / carer |
|
Savvas Savva |
Cyprus PID Association |
Cyprus |
Patient / carer, Supporter |
|
Vykintas Bartkus |
|
Lithuania |
Supporter |
|
Prof. Dr. Michael BORTE |
Municipal Hospital St. Georg Leipzig, Academic Teaching Hospital of the University of Leipzig |
Germany |
HCP |
|
Robert BIERNAT |
Childrens Memorial Health Institute, Warsaw |
Poland |
HCP |
|
Prof. Ewa BERNATOWSKA |
Childrens Memorial Health Institute, Warsaw |
Poland |
HCP |
|
Elżbieta Berdej-Szczot |
GCZD Katowice |
Poland |
Supporter |
|
Vinciane BERCKMANS |
H.A.E. |
Belgium |
Supporter |
|
Simona BELLAGAMBI |
UNIAMO FIMR, Federazione Italiana Malattie Rare |
Italy |
Supporter |
|
Prof. Isil B BARLAN |
Division of Pediatric Allergy/Immunology Marmara University Tophanelioglu, Istanbul |
Turkey |
HCP |
|
Ségolène AYME |
Orphanet France |
France |
Supporter |
|
Jo AULD |
Kings College London |
United Kingdom |
Supporter |
|
Tatjana Ždanoka |
Member of European Parliament |
Latvia |
Policy maker |
|
Glenis Willmott |
Member of European Parliament |
United Kingdom |
Policy maker |
|
Alojz Peterle |
Member of European Parliament |
Slovenia |
Policy maker |
|
Miroslav Mikolášek |
Member of European Parliament |
Slovakia |
Policy maker |
|
Mairead McGUINNESS |
Member of European Parliament |
Ireland |
Policy maker |
|
Chris DAVIES |
Member of European Parliament |
United Kingdom |
Policy maker |
|
Nessa CHILDERS |
Member of European Parliament |
Ireland |
Policy maker |
|
Jorgo CHATZIMARKAKIS |
Member of European Parliament |
Germany |
Policy maker |
|
Milan CABRNOCH |
|
Czech Republic |
Policy maker |
|
Prof. Ewa BERNATOWSKA |
Childrens Memorial Health Institute, Warsaw |
Poland |
HCP |
|
Frédéric DESTREBECQ |
European Union of Medical Specialists (UEMS) |
France |
PI stakeholder |
|
Gaby STROTMANN |
International Nurses Group for Immunodeficiencies (INGID) |
United States |
PI stakeholder |
|
Catherine SAUTÈS-FRIDMAN |
European Federation of Immunological Societies (EFIS) |
France |
PI stakeholder |
|
Prof. Jean-Laurent CASANOVA |
European Society for Immunodeficiencies (ESID) |
Switzerland |
PI stakeholder |
|
David WATTERS |
International Patient Organisation for Primary Immunodeficiencies (IPOPI) |
United Kingdom |
PI stakeholder |
|
Jose DRABWELL |
International Patient Organisation for Primary Immunodeficiencies (IPOPI) |
United Kingdom |
PI stakeholder |
|
Vicki and Fred MODELL |
Jeffrey Modell Foundation (JMF) |
United States |
PI stakeholder |
