22nd-29th April 2019

Please add your voice to our global petition!

The petition relates to our Global Primary Immunodeficiencies (PI) Call to Action, which asks governments around the world to take steps to  understand, diagnose and manage Primary Immunodeficiency Diseases in their respective countries.

You can also add your story to the World PI Week story book. 


Use the buttons below to see what we’re asking governments to do, and endorsed the Call to Action with other individuals, patient organisations, governments and medical professionals.

View the Call to Action Sign the petition

See who has signed

Total Records Found: 1556, showing 30 per page
NameAffiliationCountryI am a...
Sonja Stice Parent United States Patient / carer
Ricardo Pereira APDIP (Portuguese PI Patient Organization) Portugal Patient / carer
Savvas Savva Cyprus PID Association Cyprus Patient / carer, Supporter
Vykintas Bartkus Lithuania Supporter
Prof. Dr. Michael BORTE Municipal Hospital St. Georg Leipzig, Academic Teaching Hospital of the University of Leipzig Germany HCP
Robert BIERNAT Childrens Memorial Health Institute, Warsaw Poland HCP
Prof. Ewa BERNATOWSKA Childrens Memorial Health Institute, Warsaw Poland HCP
Elżbieta Berdej-Szczot GCZD Katowice Poland Supporter
Vinciane BERCKMANS H.A.E. Belgium Supporter
Simona BELLAGAMBI UNIAMO FIMR, Federazione Italiana Malattie Rare Italy Supporter
Prof. Isil B BARLAN Division of Pediatric Allergy/Immunology Marmara University Tophanelioglu, Istanbul Turkey HCP
Ségolène AYME Orphanet France France Supporter
Jo AULD Kings College London United Kingdom Supporter
Tatjana Ždanoka Member of European Parliament Latvia Policy maker
Glenis Willmott Member of European Parliament United Kingdom Policy maker
Alojz Peterle Member of European Parliament Slovenia Policy maker
Miroslav Mikolášek Member of European Parliament Slovakia Policy maker
Mairead McGUINNESS Member of European Parliament Ireland Policy maker
Chris DAVIES Member of European Parliament United Kingdom Policy maker
Nessa CHILDERS Member of European Parliament Ireland Policy maker
Jorgo CHATZIMARKAKIS Member of European Parliament Germany Policy maker
Milan CABRNOCH Czech Republic Policy maker
Prof. Ewa BERNATOWSKA Childrens Memorial Health Institute, Warsaw Poland HCP
Frédéric DESTREBECQ European Union of Medical Specialists (UEMS) France PI stakeholder
Gaby STROTMANN International Nurses Group for Immunodeficiencies (INGID) United States PI stakeholder
Catherine SAUTÈS-FRIDMAN European Federation of Immunological Societies (EFIS) France PI stakeholder
Prof. Jean-Laurent CASANOVA European Society for Immunodeficiencies (ESID) Switzerland PI stakeholder
David WATTERS International Patient Organisation for Primary Immunodeficiencies (IPOPI) United Kingdom PI stakeholder
Jose DRABWELL International Patient Organisation for Primary Immunodeficiencies (IPOPI) United Kingdom PI stakeholder
Vicki and Fred MODELL Jeffrey Modell Foundation (JMF) United States PI stakeholder