22nd-29th April 2019

WPIW European Parliament event – International Patient Organisation for Primary Immunodeficiencies (IPOPI)

IPOPI will be hosting its 2nd WPIW policy event in the European Parliament on April 25 dedicated to ‘Availability and access to immunoglobulin replacement therapies’.
The meeting will be chaired by Member of the European Parliament (MEP) Dr Tanasescu and important issues related to PID treatment and disease management will be addressed. Patients and physicians will highlight the priorities in Europe, in the Balcans, Russia, Africa and Asia and a nurse will bring the nursing perspective. A representative from the European Medicines Agency (EMA) will be attending to provide the regulatory perspective on these lifesaving therapies.
IPOPI has been closely monitoring the Implementation of the PID Principles of Care and will present some preliminary results of a new survey at the event.
Two years ago IPOPI led a Working Party of specialists to develop the “Primary Immunodeficiencies Principles of Care” which outlines the 6 key principles that should be in place in each country and region to provide a “gold standard” framework for the diagnosis and care of primary immunodeficiencies (PIDs). This includes specific principles on management of the conditions and treatment options.