22nd-29th April 2019

World PI Week focuses each year on an important topic or challenge surrounding PI, to increase awareness, understanding and bring about change in policy and healthcare practice.

In 2019, patient-centered care will be at the heart of the campaign: “Putting the primary immunodeficiency patients at the centre of their care”.

  • There are over 380 different types of primary immunodeficiencies which are estimated to affect over 6 million people worldwide. Each type of disease requires a customized treatment approach
  • People with PI are all different: their specific health needs should be taken into consideration in their care pathway.
  • Patients and their families should be partners of healthcare providers in the decisions related to their own care and treatment plans
  • Healthcare and healthcare systems should be designed to ultimately benefit patients. The systematic implementation of newborn screening for severe forms of primary immunodeficiency is one example of this, by ensuring that patients can be diagnosed at an early stage
  • Patient centred care will contribute to delivering the best outcomes for patients
  • A multi-disciplinary approach to the care of patients is inclusive of all actors which play a role in care delivery, from patients and doctors to allied healthcare professionals, biologists and researchers.

World PI Week 2019 will put the spotlight on the importance of a holistic approach to patient centred care, in order to improve the care and quality of life of patients and their families around the world.

2019 campaign materials

Download World PI Week 2019 campaign materials here.

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