Families struggling with immunodeficiency often do not know where to turn for help. Social, emotional, and financial burdens can often be overwhelming. This following resources are aimed at helping families cope with PI to enable their loved ones to enjoy a better quality of life.
As well as the downloadable links below, here are a few useful links from our NMOs.
IPOPI PID Patient Needs & Outlooks Survey
The Family Carers tool kit is a resource for families to help educate school staff and their broader communities about PI as well as their child’s particular primary immunodeficiency disease and needs.
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