22ndApril - 1st July 2020

Charlotte

My name is Charlotte and I am an author, associate lecturer and PhD student. I have mannose-binding lectin (MBL) deficiency, which is a condition that affects my immune system. I also have a blood disorder that makes me anaemic. I am prone to lots of infections, have damage to my lungs and bladder, and am frequently tired.

Receiving my diagnosis was validating and life-affirming. I was diagnosed in my early twenties, after experiencing a few bouts of severe pneumonia, receiving a diagnosis for a blood disorder and having over 30 infections in one year. As a worrier, my health status changed my priorities. I don’t take anything for granted, I say ‘I love you’ every day to my family, and my diagnosis has amplified my empathy and understanding for others.

My family have been outstanding in their support and strengthen my vulnerabilities.

My health is significantly improved since taking daily antibiotics.

Read the full story here.

Credits: Primary Immunodeficiency UK.

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