22nd-29th April 2022

Grosjean Virginie

“In 2006 my daughter Eva was diagnosed with Shwachman Diamond Syndrome when she was only 2months! We were lucky to meat a doctor who knew this so rare syndrome.If not, the chance of survival of our daugther would have been compromised.The world PID week is an opportunity for me to disseminate information and advocate for a better diagnosis”

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