22nd-29th April 2019

James K Carson

I was diagnosed with PI in late 2018. The years leading up to getting diagnosed, I stayed sick all the time. I even almost died from having pneumonia and not even knowing it. Before starting a life saving drug for PI, I had pneumonia at least every other month. I have been a nurse for 26 years and I knew when it got to the point I couldn’t take this awful sickness anymore and I knew something terrible was wrong. I sought out the best Immunologist I could find in my area with the utmost expertise. My first visit was 8 hours. He ordered many blood tests, but was pretty certain of what it was based on my history. I have Hypogamagoblinema and I am being infused with treatment every week. Since being diagnosed and starting treatment ASAP, I am delighted to say I have not had pneumonia nor any other infections. I feel better, I have energy that I did not have before. I now feel like I can have as a normal life as possible.

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