He was my first child and he died at the age of 9 years old.
Little did we know about the condition. After moving from hospital to hospital, doctors still did not know assuring us he would outgrow the condition.
In 2015 he got fluids in the lungs and one of his lung rob was removed, the operation took 8 hours but he came out alive.
In 2018, he passed away after getting the diagnosis which was XLA. We did not have treatment yet in Africa (Uganda).