Hi, I am a mother with 2 X-SCID boys. My first son died from a lack of diagnosis and treatment in India. My second son was treated in Great Ormond Street Hospital in London.
I am also a writer and poet, and my memoir A Roll of the Dice is being published on the 22nd of April by Linen Press. We chose to publish it during the World PI Week. My hope is that the memoir, one of the first to be written about SCID, helps creates some awareness about SCID.