Caleb Josh Testimony:
On March 09th 2017, as routine he had an episode of unusual high fever and required immediate medical attention in the PICU at Manipal Hospital, Bangalore India. Caleb was diagnosed with Primary Immunodeficiency (Hypogammaglobulinemia: Brutons disease) with absence of B cells and Sepsis of the Blood(Condition that turns the blood in the body toxic). Doctors worked frantically when he had only 5% chances of survival. Fortunately, Caleb’s vital organs were restored. But this progress was short lived and soon it was found that a Gangrenous Infection had developed on his limbs(Both Hands & Legs). Soon our child has bilateral peripheral Limb Gangerene and with Extensive Myonecrosis below knee. We comforted him and researched possible treatments as best as we could. We persisted with treatment and further diagnosed without amputation the legs would not survive. It was heart breaking to ever consider having our Son’s Legs amputated. The pitter-patter of his little feet, the sound of his footsteps, Caleb’s own dreams reverberated through our decisions as we clung on desperately. Caleb lost both his legs because of the PID in the body.
Caleb is 7 years and on monthly IvIg with 10gms. We are members of Primary Immunodeficiency patients Welfare society, India.