22ndApril - 1st July 2020

10 ways to join the World PI Week campaign online

In light of the COVID-19 pandemic, the World PI Week encourages all campaign supporters, including patients/patient organizations, healthcare professionals and medical societies, industry partners, policymakers and everyone interested to join online awareness-raising efforts and advocacy in the lead up to and during the campaign (22-29 April).

10 ways to do so:

  1. Updating your Twitter, Instagram or/and Facebook profile with the World PI Week frame. Join the Twibbon campaign here
  2. Sharing a support message or video on social media using #WorldPIWeek or @WorldPIWeek; or relaying publications of the primary immunodeficiency community. You will find various downloadable visual materials and illustrations for social media use on the World PI Week website
  3. Participating in the World PI Week photo contest #PIctureAwareness: strike a Y in colours!
  4. Posting an article about primary immunodeficiency on your website or blog. A template blog post is available here.
  5. Disseminating the World PI Week video on your website/by email to your networks, or ensuring broadcast on local TV, in hospital settings, pharmacies etc
  6. Signing the World PI Week call to action
  7. Joining the first-ever World PI Week webinar on 22nd April, 15.00 CET which will mark the start of the campaign, or joining the World PI Week event page on Facebook
  8. Sharing your story or experience on the World PI Week website or on social media by joining the #MyPIstory campaign
  9. Emailing the World PI Week educational materials to your colleagues, families and friends or your school
  10. Engaging with your local/regional or national media by email/phone to tell your experience or story and highlight latest developments or unmet needs, encouraging media coverage. Further guidance here.