The campaign for World PI Week 2021 is all about protecting and improving the lives of the millions of people living with primary immunodeficiency worldwide by supporting early diagnosis and access to care.
Teaser 1: Stories of patients and parents of children living with primary immunodeficiency
In the first video, patients and parents of children with PID from all over the world and all walks of life are featured. Michael from Canada, Krissie (mother) from the United States, Vivian from Bolivia, Myriam from France, Maria from Morocco and Xiao Xiong from China. They discuss the themes of this year’s World PI Week, including: the need for the availability of plasma, the impacts of the treatments they have received, and the changes in quality of life before and after treatment.
Teaser 2: Patients and parents of children with PID talk about the mental health and emotional impact of living with primary immunodeficiency
In the second video, patients and parents of children with PID from all over the world and walks of life are featured. Krissie (mother) from the United States, Vivian from Bolivia, Victoria from the United Kingdom, Myriam from France, Xiao Xiong from China, and Muhd (fater) from Malaysia
They discuss the mental healthimpacts that can arise following a PI diagnosis and emotional aspects of living with a PID; and the importance of protecting those who are immune compromised.
Teaser 3: Policymakers and PID experts explain why they support World PI Week
Hear the messages from policymakers and experts from all over the world: Ruediger Krech, Director of Health Promotion at the World Health Organization; Claudia Grey, Pediatrician and Allergist at Kidsallergy Centre-South Africa; Stella Kyriakides, European Commission for Health and Food Safety, and Sary Workman, Senior Clinical Research Nurse/Clinical Nurse Specialist at Free Royal London NHS Foundation Trust-UK.
They reflect on sustainable plasma supplies, patient safety and protection, the role of vaccination, and healthcare systems design. Additionally, they emphasize why awareness raising is so important and why they support World PI Week.
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